Anthony Nolan
Description
Anthony Nolan is the UK's blood cancer charity and bone marrow register. House Rules
Welcome to our Facebook page. We have created this page for you to share comments, feedback, questions, photos and videos. We want you to feel safe and comfortable using this page so please have a look at our House Rules.
Privacy
People who use this page often want to post messages of support for loved ones who have been diagnosed with a blood cancer. This is a really great thing to do, but we need to make sure you are aware of data protection requirements concerning privacy.
If you want to name individuals who have been diagnosed with a medical condition, you must get their explicit consent before doing so.
To protect privacy, we may remove posts which reveal confidential information about patients, transplants, any of our donors (including donors of blood stem cells , bone marrow or umbilical cord blood ), or anything relating to collections from our donors. You can find out more about data protection and privacy on the Information Commissioner’s website: http://www.ico.gov.uk/for_the_public.aspx or our website: http://www.anthonynolan.org/
Medical Concerns
People may post medical tips and ideas in the page. Please remember that any content posted here should not be considered medical advice. You should discuss any questions or concerns about your health with your healthcare professional(s).
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Please keep all posts relevant and respectful of others. This is a safe space for people to communicate safely and comfortably. Anthony Nolan may, at our sole discretion, remove any posts which we consider inappropriate or offensive, including posts which are harassing, abusive, obscene, hateful, racist, sexist or homophobic, as well as posts which promote commercial products or illegal activities, or which violate Facebook’s terms of service. If you continue to post inappropriate or offensive messages we may remove you from the page.
Our Facebook page is normally only monitored by us Monday-Friday 9am - 5pm excluding bank holidays in England and Wales.
If you think someone is misusing the page or breaking the House Rules, or if you have any feedback on how to make this group a better space, please contact: Digital@anthonynolan.org.
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RECENT FACEBOOK POSTS
facebook.comPhotos from Anthony Nolan's post
Earlier in 2016, we found three potential stem cell donors for Sam to treat her leukaemia – but tragically, she passed away before a transplant could take place, at the age of just 29. In this incredible, moving post, Sam’s friend Rosie explains how she’s been motivated to overcome her fear of needles, and sign up as a stem cell donor. ‘Me and Sam would talk about how rewarding it must be being a donor, but how my fear of needles was stopping me. ‘However, I truly believe if I was a match for someone in need and asked to donate, then that fear would be easily overcome. ‘For that reason, I recently registered to become a donor with Anthony Nolan. I received my spit test kit today to send off and hopefully have a place on the register. It is such a simple thing to do and could potentially save someone's life. ‘Sam was funny, caring and one of the bravest friends I will ever know who touched the lives of so many people. Words don't begin to describe how much I'm going to miss you. Love you Sam x’
Photos from Anthony Nolan's post
'I think I’m probably going to cry a lot when I cross that finish line!' In 2015, Martin was told that he'd need a bone marrow transplant to treat his AML. (Incredibly, just months earlier, his daughter Verity had donated her stem cells with us to help a complete stranger.) Anthony Nolan found a match for Martin. And now his daughter Hettie is taking on the London Marathon 2016 to raise vital funds and help us save more lives. If you see Hettie at the marathon, give the biggest cheer you possibly can to an amazing runner - from a wonderful family. http://blog.anthonynolan.org/2016/03/hetties-london-marathon-for-my-dad/
Timeline Photos
'There simply aren’t enough young men on the register. If you can deal with a hangover, then you can deal with this whole procedure. 'We need more heroes – join the club.' George, stem cell donor www.anthonynolan.org/marchofthemen #MarchOfTheMen #DonatingIsntScary
Donate your stem cells
‘Doesn't hurt at all, and the hospital staff are taking good care of me!’ We think all of our donors are heroes. But we’re particularly delighted by Paul, who gave the chance of life to a complete stranger last week, while wearing a very appropriate Superman T-shirt. (And a thumbs-up.) Thanks so much to Paul and all of our amazing donors; if you’re 16-30 and you want to find more about donating stem cells yourself, just visit https://www.anthonynolan.org/register
Join our RideLondon team
‘We’re looking forward to the adrenaline rush, London landmarks and the surrounding countryside, working as a team – and raising money by way of a ‘thank you’ to my donor.’ In 2014, we found a lifesaving stem cell donor for Andy. In 2016, along with his sons Nathan and Matthew, he’s taking on the incredible challenge of the Prudential RideLondon-Surrey 100 as part of Team Anthony Nolan. Find out more about joining the team here: http://ridelondon.anthonynolan.org/
New molecule has stem cells primed for harvesting within the hour
Researchers from CSIRO in Australia have discovered a new molecule that could make stem cell donation faster and simpler than ever before. Currently, donors need to undergo a series of G-CSF hormone injections over several days before their donation, to release their stem cells into their bloodstream. But CSIRO’s scientists believe with their new method, this process could take just an hour. The research is still in its very early stages, but we’re incredibly excited about the prospect of making lifesaving donations even easier.
March of the Men
‘I was at the Freshers’ Fair at university. You know what it’s like, you go to uni where everything is new, fresh and exciting and you want to sign up for everything. ‘There was a Newcastle Marrow stall, and the volunteers told me all I had to do was spit in a tube to sign up and be a stem cell donor. It was all very quick and easy. ‘Before donating I watched a lot of patient videos on Anthony Nolan’s YouTube page, and I just thought about how they might be feeling, what situation they were in. ‘I’ve been in a position to save someone’s life by being in the right place at the right time. I was in the only person in the world for this person and that’s the biggest thing for me. I was the key in the lock for them.’ Aaron, stem cell donor https://www.anthonynolan.org/marchofthemen #MarchOfTheMen
Anthony Nolan Patients and Families Page
‘I tackled it all with a good sense of humour; that’s me and how I deal with things.’ ‘It definitely made us stronger. The treatment for leukaemia is very harsh, hard on your body, and the things you go through are not pretty – but we faced them together.’ Nobody understands the emotional impact of a stem cell transplant more than our amazing community of patients and their families. That’s why, with their help and support, our Patient Experience team has created a new Essential Guide to Emotional Wellbeing during and after a transplant. Download it here: https://www.anthonynolan.org/sites/default/files/903PA_Mini_EmotionalWellbeing_v5.pdf
Life after leukaemia - Nilush's story | Anthony Nolan – Our Stories
'I just didn’t have a clue. I didn’t really know what leukaemia was. 'They’d already tested my brother to see if he was a match for me (he wasn’t), so now the hunt was on for an unrelated donor, to provide me with a stem cell transplant. 'More than once, my doctors told me that they’d found me a perfect match. But then the donation fell through, again and again.' In 2013, Nilush's leukaemia returned - and he was told that he'd need a stem cell transplant. But after several adult donors dropped out at the last minute, he found himself desperately short on options. http://blog.anthonynolan.org/2016/03/life-after-leukaemia-nilushs-story/
Photos from Anthony Nolan's post
All of us at Anthony Nolan were truly saddened to hear of Emily Clark's tragic passing last weekend. We knew Emily as a bright and inspirational young woman. We watched her campaign selflessly to raise awareness and recruit stem cell donors, despite everything she was going through herself. We saw her determination in the face of adversity touch many lives. Thanks to all of her tireless work, she leaves behind a great legacy – and hope for others desperately searching for a match. Emily’s family are now raising money to fund a new bone marrow transplant ward at Cardiff and Vale University Health Board. We know they’d value your support: https://www.justgiving.com/remissionpossible
Timeline Photos
'I really can't stress enough how easy the whole process has been from start to finish, and can genuinely say the most painful part was when they took the tape off my arm and ripped the hair off :|.' This week, Ray was donating his stem cells to save the life of a total stranger - and he wasn't doing it alone, either. With his wife and daughter at his side, it's safe to say that the Nobles are keeping lifesaving in the family. You guys are completely fantastic!
Timeline Photos
'Thank you very much for giving me your bone marrow. I hope it doesn't hurt and you didn't have to stay in hospital too long. I am back home now and doing well. My friends think it's cool my new bone marrow is from America, so do I. Thank you very much, From Me :)'
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