CML Advocates Network
Description
Global network of 112 patient organisations in 84 countries supporting patients with Chronic Myeloid Leukemia. We are a worldwide network of non-profit organisations supporting patients with Chronic Myeloid Leukemia (CML) and their relatives. We do this by sharing knowledge and best practice, supporting campaigns, and educating advocates how to build and grow patient groups. The network is solely run by volunteers who are CML patients themselves.
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RECENT FACEBOOK POSTS
facebook.comCML Advocates Network - CML Horizons 2017 - Call for Posters
Dear Horizons Advocates: We invite you to bring your poster to the the CML Horizons 2017 Advocacy Poster Area and email it to us prior to 22 May 2017: this is the ideal opportunity to illustrate your organisations CML activities at a global level. Visit our website for more instructions:
CML Advocates Network - CML Horizons 2017 - Call for Abstracts
Call for Abstracts: CML Advocacy Best Practice presentations at CML Horizons 2017. Participants are invited to submit abstracts on CML activities within your organisation. This is the opportunity to showcase your CML patient advocacy initiatives with the Global Horizons audience. More information here:
CML Advocates Network - ASH 2016: Interviews about hot topics in chronic myeloid leukemia
We are happy to share with you these short video interviews of the Video Journal of Hematological Oncology that highlight our CML patient’s view on several points as the safety of stopping treatment, the new BCR-ABL inhibitor ABL001, generic Imatinib and some other hot topics on #CML.
Third Cycle - Apply Now - EUPATI
Calling CML Patient Advocate Leaders to apply for the 3rd EUPATI Patient Expert Training Course. This EUPATI patient expert training course is tailored to patient advocates and turns them into patient experts in medicines research and development. Do not delay your application deadline is 31st March 2017
CML Advocates Network - Welcome, CML Zimbabwe! Now 114 patient organisations from 85 countries in the CML Advocates Network
We are very happy to welcome our newest member CML Zimbabwe to the CML Advocates Network.
Rare Disease Day 2017 - 28 Feb
'With research, possibilities are limitless' Support #RareDiseaseDay #cml #leukemia #cancer #patient #advocates #ERN rarediseaseday.org
Generics for chronic myeloid leukemia treatment – a hot topic at ASH 2016 as imatinib patent expires
"Extra News CML": Tune and listen to Jan Geissler discuss the very hot topic of Generics and the patent expiry of Imatinib and what this can mean to you.
Timeline Photos
Our three-Day CML-CAB with Novartis and Takeda/ARIAD/Incyte was tough, productive and fun. Thank you Kathy, Lidija, Celia, Giora and all CML-CAB members for all your valuable contributions - great teamwork - and Tamas for an excellent training. We've been very clear about the needs of the CML Patient community, and we've defined good actionable steps. We will report to our community very soon!
Photos from CML Advocates Network's post
Day 1 of our CML Community Advisory Board (CML-CAB) has kicked off with training & capacity building session for the CML leaders from around the world, provided by Tamas Bereczky & he gives us an interactive style of training where we move around and interacted and engaged. Tamas brings 20 years of experience that EATG has in patient advocacy.
Timeline Photos
Timeline Photos
Don't forget to submit your Call for Abstracts. http://www.cmladvocates.net/cmlhorizons
Journal of Cancer Research and Clinical Oncology - incl. option to publish open access
Hooray! We are so happy to tell that our manuscript on our adherence survey in 79 countries has been accepted for publication in the Journal of Cancer Research and Clinical Oncology! We are now waiting for the final proofs and hope the final paper will be published online very soon! Very proud - for us non-scientists, it wasn't really easy to get this published in a journal... (Don't search for the paper, it's not online yet, we just received the news on acceptance today!)