Please get in touch if you would like your local school to take part in this event in aid of Rett Syndrome Contact us via facebook, or info@rettsyndrome.ie, www.rettsyndrome.ie See below gene project which we are actively partaking and why support and fundraising is so important to us https://reverserett.org/avexis-reports-rett-gene-therapy-program-avxs-201/

The attached book is informative for Rett parents and also 100% of the Royalties are being paid directly to Reverse Rett funding the cure. It is not just about disability but also ability. This girl achieved having fun. As this is available on Amazon and raising funds for Rett Syndrome. Take a look at the below Andre Govier https://www.facebook.com/liargirl2016/videos/1629990180428575/ https://www.amazon.co.uk/Living-Like-Livvy-Mothers-Syndrome/dp/198426382X/ref=redir_mobile_desktop?_encoding=UTF8&ref_=aw_cr_t_books

Help Support Rett Syndrome Awareness and Fundraising by partaking in our Parachute Jump Challenge!! Over 30 people (yes there are that many crazy people out there!!!) are signed up to jump on behalf of Rett Syndrome to help fundraise All funds raised from this event are going directly to our research work with Dr Tropea If you are interested in supporting our volunteers with their fundraising and sponsoring a "jumper" or indeed signing up for the jump yourself please get in touch info@rettsyndrome.ie #RettSyndromeAwareness #RettSyndromeIreland #RettResearch

Congratulations to Rett parent Lynnmarie for shaving her hair for Rett Syndrome and organising 2 events recently - shave/wax for Rett and Coffee Morning Well done to all involved and thank you for supporting Rett Syndrome PS: Lynnmarie is taking Personal donations for a woolly hat if anyone is interested :-)

Thank you to Slane Castle for their recent Open Farm Day in support of Rett Syndrome! A great fun day out for all who were able to attend, all proceeds raised are going directly to our Rett Syndrome Research project #RettSyndromeIreland #RettSyndrome #RettAwareness

RETT Syndrome Awareness & Fundraising Event Please share with family and friends who are around the Curragh who can come and support Rett Syndrome Association of Ireland. If you cannot make it and would like to donate towards this event please Text RETT to 50300 (€4) or I-donate to "Rett Syndrome Association of Ireland"

Rett Syndrome are hosting a coffee morning in Newbridge - please support and attend if you are in the locality, it is sure to be a great morning. Share with friends who may be in the area Thanks and well done to Lynnmarie Galvin (Jessica's mum) for organising

Rett Syndrome are hosting a coffee morning in Newbridge - please support and attend if you are in the locality, it is sure to be a great morning. Share with friends who may be in the area Thanks and well done to Lynnmarie Galvin(Jessica's mum) for organising

Rett Syndrome Awareness Month - Alive & Kicking features Rett Syndrome http://www.newstalk.com/podcasts/Alive_and_Kicking/Alive_And_Kicking/206639/Rett_Syndrome__Do_you_know_what_it_is Congratulations to Dr Daniela Tropea (Rett genetics expert) and Carina Conyngham (Rett parent to Laragh) for their excellent interview on Alive & Kicking recently. Great publicity and spreading awareness for Rett Syndrome Thank you to Dr Ciara Kelly for hosting and helping to promote awareness for Rett Syndrome Newstalk #RettSyndromeAwareness #RettSyndromeIreland #RettSyndrome